Welcome to Learning from Dylan. It’s hard to believe it's been a year since I made perhpas my hardest decision ever, the decision to teach my son who has CHARGE syndrome and is deafblind in a team-driven, home and community based educational program. As I took that flying leap of faith from school to home, I thought I would be teaching Dylan. In fact I have been Learning from Dylan. Perhaps Dylan being the teacher, and my being the student, is key to the joy we experience i

If you're new to this blog you may be wondering why we decided to teach Dylan, our 17-year old son with CHARGE syndrome, at home. I will tell you it was not an easy decision. I knew there would be many losses if we pulled Dylan from school as well as the potential for many gains. What about his peers? What about his trusted Intervener? What about his brilliant communication specialist and orientation and mobility instructor? What about the availability of technology?